Project - A trinational network for education and research in and management of complex and rare diseases in the Upper Rhine region

Description


Description (EN): The challenge of this project is achieving the best possible management of patients suffering from rare autoimmune and/or oral diseases by investing in the training of health workers and the intermediaries involved in patients' lives and treatment, as well as the patients themselves. In order to achieve this, RARENET will create training programmes and materials for different target groups.
Description: Ce projet a pour défi la prise en charge optimale des patients atteints de maladies rares autoimmunes et/ou bucco-dentaires en investissant sur la formation des acteurs de santé et des interlocuteurs accompagnant le parcours de soin et de vie du malade, ainsi que le malade lui-même. Pour atteindre cet objectif, RARENET va mettre en place plusieurs actions et supports de formations pour les différents publics ciblés.
Description: Die Zielsetzung dieses Projekts besteht in einer optimalen Behandlung der Patien mit seltenen Autoimmun- und/oder Krankheiten im Zahn- und Mundbereich durch die Verbesserung der Ausbildung des Gesundheitspersonals und der Ansprechpartner, die den Behandlungs- und Lebensweg des Erkrankten begleiten, sowie der Patienten selbst. Hierzu werden im Rahmen des Projekts RARENET diverse Ausbildungsmaßnahmen durchgeführt und Werkzeugen zur Ausbildung der verschiedenen Zielgruppen erstellt.

Thematic Information


Thematics: Education and training  Health and social services  Institutional cooperation and cooperation networks  
Specific Objective: Expansion of the crossborder research capacity for R&I excellence in the Upper Rhine
Thematic Objective: (1) strengthening research, technological development and innovation by:
Investment Priority: (1a) enhancing research and innovation (R&I) infrastructure and capacities to develop R&I excellence, and promoting centres of competence, in particular those of European interest


Project Summary


Project name (EN): A trinational network for education and research in and management of complex and rare diseases in the Upper Rhine region
Project name: Un réseau trinational pour l'enseignement, l'étude et la prise en charge de maladies complexes et rares dans le Rhin supérieur
Project name (Other language): Ein trinationales Netzwerk für die Lehre, die wissenschaftliche Untersuchung und die Behandlung von komplexen und seltenen Erkrankungen am Oberrhein
Project acronym: RARENET

Period: 2014-2020
Date of latest update: 2019-05-13

Web: http://www.rarenet.eu/

Project start date: 2016-01-01
Project end date: 2018-12-31
Project status: Closed

Total budget/expenditure: EUR 3.979.174,00
European Union funding: EUR 1.989.587,00

Project documents

The documents below were published as mentioned in field "Data source" (attached to each document). Keep.eu users are free to use these documents as long as the data source and keep.eu are mentioned.

Link to ressources on Odontology and Immunology
Type of document: Website / webtool / webforum / cooperation platformDate of the document: Not availableDate of publication in keep.eu: 2019-02-27Language of the document: English, French, German
Data source: http://www.rarenet.eu/
Link to scientific articles
Type of document: Website / webtool / webforum / cooperation platformDate of the document: Not availableDate of publication in keep.eu: 2019-02-27Language of the document: English, French, German
Data source: http://www.rarenet.eu/


Partners Data


Lead Partner (EN): Université de Strasbourg - Faculté de Chirurgie Dentaire
Lead Partner: Université de Strasbourg - Faculté de Chirurgie Dentaire
Address: 4 rue Blaise Pascal, Strasbourg, France
Website: info.interreg@grandest.fr
Legal status: public

Address: Hugstetter Straße 49, Freiburg, Germany
Legal status: public
Website: info.interreg@grandest.fr
Address: Hugstetter Straße 49, Freiburg, Germany
Legal status: public
Website: info.interreg@grandest.fr
Address: Obere Zahlbacher Str. 63, Mainz, Germany
Legal status: public
Website: info.interreg@grandest.fr
Address: Im Neuenheimer Feld 672, Heidelberg, Germany
Legal status: public
Website: info.interreg@grandest.fr
Address: 1 rue Laurent Fries, Illkirch, France
Legal status: public
Website: info.interreg@grandest.fr
Address: 4 rue Blaise Pascal, Strasbourg, France
Legal status: public
Website: info.interreg@grandest.fr
Address: 23 rue du Loess, Strasbourg, France
Legal status: public
Website: info.interreg@grandest.fr
Address: 1, place de l''Hôpital, Strasbourg, France
Legal status: public
Website: info.interreg@grandest.fr

Partners Location


  Lead Partner     Project Partner